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Tag: genetic privacy

Genealogy and the Golden State Killer

April 26, 2018 thednageek 55d Comments

This post has been updated. On April 25, 2018, news broke that Joseph James DeAngelo was arrested as the serial…

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Posted in: Lagniappe Filed under: Buckskin Girl, GEDmatch, genetic privacy, Golden State Killer, investigative genetic genealogy (IGG), law enforcement

H.R. 1313 Rears Its Ugly Head Again

December 12, 2017 thednageek 5d Comments

Hot on the heels of Senator Schumer raising undue alarm about the privacy protections at the genetic genealogy testing companies, a real threat has reemerged in the United States: House Resolution 1313.

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Posted in: Lagniappe Filed under: Americans with Disabilities Act, Genetic Information Nondiscrimination Act, genetic privacy, health insurance, House Resolution 1313 (HR1313)

Who Owns Your Genetic Information?

December 3, 2017 thednageek 14d Comments

The main genetic genealogy companies give you complete control over whether they share your data with third parties, and you can withdraw your consent at any time.

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Posted in: DNA Testing, Lagniappe Filed under: 23andMe, AncestryDNA, Family Tree DNA, genetic ownership, genetic privacy, informed consent, MyHeritage

Do You Have a Legacy Plan for Your DNA?

September 28, 2017 thednageek 1 Comment

We write wills to provide for our loved ones after we die and to ensure that precious family heirlooms go…

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Posted in: Lagniappe Filed under: beneficiary, Blaine Bettinger, Family Tree DNA, genetic ownership, genetic privacy
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Cystic Fibrosis: A Case Study in Genetic Privacy

March 20, 2017 thednageek 10d Comments

This post has been updated. Blaine Bettinger recently wrote a post entitled “Are You Doing Everything to Identify Your Matches?”…

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Posted in: Lagniappe Filed under: 23andMe, cystic fibrosis, Family Tree DNA, GEDmatch, genetic privacy, Genome Mate Pro, medical traits

Genetic Privacy and H.R. 1313

March 12, 2017 thednageek 10d Comments

Judy Russell, The Legal Genealogist, just published an important blog post titled “A genetic privacy gamechanger?”.  It is about H.R.…

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Posted in: Lagniappe Filed under: autosomal DNA, Genetic Information Nondiscrimination Act, genetic privacy, health insurance, House Resolution 1313 (HR1313)

Upcoming Changes to Kit Registration at AncestryDNA: Keep Calm and Carry On

February 24, 2017 thednageek 103d Comments

Some AncestryDNA users who have tried to register a new kit in the past couple of days are getting this…

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Posted in: DNA Testing Filed under: AncestryDNA, genetic privacy, informed consent

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